85 days of hope

On June 4th I had my first video chat with my 86-year-old Mom.  She spoke with me while seated in her Broda chair with the assistant director of nursing by her side holding the video device.  Even though she was tired, we talked for about 30 minutes.  This chat may seem ordinary to you, but to me it was nearly a miracle.  Mom and I had not spoken since March 11th, not for 85 days.  It was 85 days of hope.

hope

As the middle child of seven kids, I was used to fighting to be heard.  This time, I fought long and hard to have this precious 30 minutes with Mom.  I started this fight to talk with my Mom on April 11th when I made three phone calls to speak with her at the nursing home where she resides. Each time I was told she was either sleeping or someone else was using the mobile phone.  I was told to call back later. 

On April 25th I tried calling again.  This time I was told that speaking to residents via the mobile phone was no longer allowed due to the potential spread of the COVID-19 virus within the facility.  The staff member comforted me though with the promise of a video chat that following week.  Patiently, I waited for the call but with each passing day I became more anxious without any word.  Through news reports, I heard there were 15 positive test results among residents and staff and two deaths at Mom’s small long term care facility of only about 34 residents.   I prayed and I had hope I would get to talk with Mom soon.

On May 5th I had a large bouquet of flowers delivered to my Mom for Mother’s Day along with a card.  I wanted Mom to know that I had not forgotten her.  The day after Mother’s Day I emailed the center’s staff asking if they would please send a photo of Mom with the flowers I sent.  I wanted to be sure she received them.  Two days later, I received an email reply saying they needed written permission from Mom’s power of attorney (POA) for me to have a photograph.  I asked if they could get that permission for me since I lived 825 miles away.  She did not respond to my request.  By now, there were 22 residents and staff with positive test results and three deaths at Mom’s facility.  Mom’s tests had come back negative, which was a relief. I kept praying.

On May 15th one of my sisters briefly visited the center and called to have a window visit with Mom.  She was wheeled into position but she seemed upset and she made no eye contact with my sister.  Mom’s appearance was disheveled and she appeared to have lost weight.  Now, I was upset and even more anxious. Now was not the time to lose hope.

That same day, May 15th, I emailed Mom’s POA asking for their written permission to communicate with Mom via video and to have a photo of Mom with her flowers.  I did not receive a reply.

I knew from prior research that Mom and other residents had access and visitation rights through the Nursing Home Reform Act of 1987. She didn’t need a POA’s written permission to speak with her children but no one asked her so the fight began along with more prayers.

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Just a simple haircut or is it?

simple haircut

How often do you get your hair cut? When I’m not growing my hair out, I get mine cut every six weeks. Simple right? Well, it’s not if you are in a nursing home under someone else’s care (or should I say thumb).

I have called the nursing home where my Mom is living out her final days every six weeks or so since June to set up a simple haircut appointment. I speak with Mary and I’ve been told she would set up the appointment for the following Friday.

However, I visited my Mom in November and she had not had her hair cut in months. I could not believe it. My Mom’s care is self-pay until her money runs out. She definitely has $20 for a simple haircut so what’s the problem you ask?

It seems Mom’s non-family member power of attorney doesn’t think she needs a haircut and won’t authorize it or use her money to pay for it. So, I sent a check for $20 on November 12th to the nursing home with a nice card asking them to schedule an appointment at their earliest convenience. Afterall, it’s just a simple haircut.

It’s now January 2020 and I checked my bank account the other day to see if the check I sent had been cashed. It had not. So I emailed the nursing home to inquire about the check and the haircut. They replied that their stylist had quit and the replacement was sick throughout December. Since they now have a new stylist my Mom will finally get her hair cut this Friday the 10th. Six months after I thought I scheduled Mom’s first haircut. A haircut is not so simple after all.

Nursing home phones keep families connected

nursing home phone
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Alexander Graham Bell’s dream was for there to be a telephone in every major city. My dream is one day there will be nursing home phones or a similar device in every resident’s room so families can stay connected.

Monta Fleming wrote in her blog post, The Importance of the Phone for the Elderly, “Reliable communication is such a common, ordinary thing that we do not even think about it anymore. The invention of the telephone by Alexander Graham Bell in 1876 revolutionized the way we think about communication. Now, today, we have cell phones and email as well as landlines. But, to many of the elderly, a phone is their only source of communication with the outside world.” This is the case with my Mom who is currently in a nursing home under hospice care.

After Mom entered the nursing home for skilled nursing care on May 17th, I learned she did not have access to a phone in her shared room. Something I did not even consider when I toured the facility and three others. I have since learned that by federal law, nursing home residents have certain rights; one of them is the use of a telephone.

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Facebook helped find me after Mom’s fall

Facebook Messenger on May 7th:

2:15 p.m. “Hi sherry. I think your mom is Irene?”

2:19 p.m. J/M tried to call me through Messenger.

4:08 p.m. “Your moms neighbor.”

5:53 p.m. “Please call me at ____________ it’s about your mom.”

6:18 p.m. I called J/M.

This is how Facebook helped find me after Mom’s fall. My Mom’s neighbors sent me the above alarming messages May 7th on Facebook’s Messenger. They tried several times to reach me to tell me my Mom had fallen in her home and an ambulance transported her to the local hospital. She had been down for approximately 16 hours before they found her, but she was not unconscious. My whole life changed after that 39 minute phone conversation at 6:18 p.m.

I called my daughter, a nurse, right away to tell her the heartbreaking news and then I texted my sister in Oregon. She would have the furthest to travel if she wanted to go to see Mom. Since it was getting late, I would contact my other five siblings in the morning once I found out more information. Worried about what happened and how hurt, inside and out, my Mom was, I had difficulty sleeping.

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